For information regarding the Colostomy Association, you should contact : The Secretary, Colostomy Association, 15 Station Road, Reading, Berkshire, RG1 1LG Tel : 0118 - 939 -1537 Freephone : 0800 - 328 - 4257(for use by members and friends of the association only) Fax : 0118 - 939 - 9095 E-mail: cass@colostomyassociation.org.ukOr visit their website at : www.colostomyassociation.org.uk(Registered charity number 1113471)
For information regarding ua, you should contact : Mrs. Hazel Pixley National SecretaryUrostomy Association Central Office18 Foxglove AvenueUttoxeterStaffordshire ST14 8UNTel: 0870 7707931Fax: 0870 7707932E-mail: info.ua@classmail.co.uk Or visit their website at : www.uagbi.orgua is registered charity number 270600
For information regarding the National Association for Colitis and Crohn’s Disease, you should contact : National SecretaryNACC4 Beaumont HouseSutton RoadSt. AlbansHertsAL1 5HH Telephone : Administration 01727–830038Information line 0845–1302233 (weekdays 10am- 1pm)NACC-in-Contact 0845-1303344 (weekdays 6.30 - 9pm)Fax: 01727 - 862550 E-mail: nacc@nacc.org.uk Or visit their website at : www.nacc.org.ukNACC is registered charity number 282732
International Ostomy Association (IOA) The purpose of the International Ostomy Association is to provide an association in the form of a world council for the benefit of ostomates, run by ostomates, and in full interests of all ostomates, with the co-operation of outside help when required, and to represent the viewpoint of ostomates on the international level.The association is organized to encourage the highest possible standards of surgery, medical attention, and patient after-care, and to assist member associations to help rehabilitate ostomates, thereby enabling them to achieve the quality of life they seek in all its aspects.The Aims of the International Ostomy Association are: * To provide information and management guidelines to its Member Associations * To help to form new Ostomy Associations * To represent worldwide the interests of all ostomates and those with related surgeries by advocating on all ostomy related matters and policiesThe primary Objectives of the International Ostomy Association are: * To provide and distribute information to its Member Associations by : 1. collecting and evaluating written information and experiences 2. publishing the "Ostomy International" journal and "IOA News" 3. publishing other advisory information and news material 4. organizing meetings and congresses * To initiate and support the formation of new Ostomy Associations by : 1. developing guidelines for founding and maintaining an ostomy group 2. providing mentorship for new groups * To advocate for the rights of ostomates and those with related surgeries by : 1. maintaining an awareness of issues that are impacting, or could influence, the quality of life and initiating policies and activities to address these issues 2. co-ordinating and supporting all efforts to develop, establish and provide basic standards in ostomy care and rehabilitation 3. co-operating with medical and nursing associations, government health administrations and other allied organizations 4. promoting co-operation among the professional and manufacturing community who contribute to the advancement of the quality of life
The European Ostomy Association (EOA) is a not-for-profit organization for ostomate associations all over Europe, North Africa and The Middle EastA total of 42 organizations belong to EOA.The aims and objectives for EOA are stated in its Constitution. The goals to be achieved are stated in the Charter of Ostomates Rights. It is well known that ostomates in some countries within EOA have many problems. Some of the problems relate to discrimination, and some to the fact that their appliances are not available in all countries.One very important goal for EOA is to help organizations all over EOA to have the Charter implemented and accepted by the authorities. Just coming into contact with the authorities can be a problem in some countries, having EOA backing will often be a great advantage. As EOA has members in many parts of the world, and with a large number of languages, it takes great care to back every association in their effort to get authorities to accept the Charter.Visit the EOA website at http://www.ostomyeurope.org
Kingston TrustThe Kingston Trust is a Registered Charitable Trust, whose aim is to provide assistance for elderly ileostomists experiencing financial hardship.Grants can be made either as a one-off payment for a specific need, such as for a new washing machine, a telephone, or a convalescent break, or for short-term routine payments, which are reviewed at regular intervals.Applications for any purpose will be considered.Further information about the Trust, and grant application forms, can be obtained from the Secretary to the Trustees at : The Kingston TrustPO Box 6457BasingstokeHantsRG24 8LGTel: 01256-352320E-mail: secretary@ktrust.org.uk
This web site explains in clear, easily understood terms why bowel surgery sometimes becomes necessary, what is involved and life after surgery, as well as links to numerous support groups.It is an ideal reference for those waiting for, or those that want to find out more about bowel surgery.For more information visit http://www.allaboutbowelsurgery.com/Bowel Surgery
Drugwatch is a comprehensive web site featuring information about thousands of different medications and drugs, including Accutane, a medication linked to side effects associated with Crohns Disease and Ulcerative Colitis.For more information and comprehensive information on a range of other drugs, go to http://www.drugwatch.com/accutane/
Links home
Colostomy Association
Urostomy Association
NACC (National Association
for Colitis and Crohns Disease
IOA (International Ostomy
Association)
EOA (European Ostomy
Association)
Kingston Trust
All About Bowel Surgery
Support Groups
Professional Bodies
&Charitable Organisations
Ostomy Appliance &Supply
Companies
Use the menu on the left to see more on each of the links
The Ileostomy Association is just one of a number of charities or
organisations providing support to people with bowel or bladder
dysfunction.
Use the left menu to find out more about each
CA (Colostomy Association) - for Colostomists
UA (Urostomy Association) - for Urostomists
NACC (National Association for Colitis and Crohns
Disease) - for sufferers of ulcerative colitis or
Crohns disease
IOA (International Ostomy Association) - the
international organization for ostomy support
groups all over the world
The European Ostomy Association (EOA) is
a not-for-profit organization for ostomate
associations all over Europe, North Africa
and The Middle East
KT (Kingston Trust) - for elderly ileostomists
All About bowel surgery
Support groups - Your local IA groups and more
Professional Bodies & Charitable Organisations
Ostomy Appliance & Supply Companies
Links
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